Disability Tax Credit and Benefits for Ehlers-Danlos Syndrome (EDS)

Introduction

Ehlers-Danlos Syndrome is a group or disorders that are inherited, and marked by incredibly loose joints, hyper elastic skin that can bruise easily, and blood vessels that are extremely sensitive and easily damaged to the touch or through other wounding and physical issues that manifest in a patient affected by EDS.

There are six major types and at least five minor types of EDS, though they are all roughly the same in that they are acquired through gene mutation and cause problems with collagen and other materials that provide strength and structure to the skin, bones, and internal organs of a patient.

Causes

Family history is a significant risk factor in many cases of EDS, as people are affected by this through their inheritance and as a product of their genetics and genetic issues. Thus, scientists are studying family histories and specific gene mutations to get a better understanding of EDS and how it affects people’s nerves and their nervous systems, as well as their skin and bone structures.

Other than that, EDS does not have any known acute or viral causes, and is not affected by any outside forces or external causes like other viruses or disorders. Not much more is known about the causes of EDS than this gene mutation, and how the genes mutate in the first place is still up for debate among the medical community.

Symptoms

The symptoms of EDS are numerous, and typically include double-jointedness, skin that can stretch, bruise, and damage very easily, easy scarring of the skin that is accompanied by poor and slow wound healing, and flat feet. Additionally, it manifests itself with increased joint mobility, early arthritis, joint popping, joint pain and dislocation, premature rupture of membranes during pregnancy, and even in some cases, vision problems.

There is no cure for EDS, and those living with the issue have to consistently deal with loose and sensitive joints for the rest of their lives, in many cases. Physical therapy can be an option, though it does not always treat the root causes of the problems, and may only temporarily alleviate pain and reduce stress.

People with EDS can live normal and highly-functioning lives, though they may also have to deal with issues related to scarring, bruising, and other unsightly problems on their skin, as well as the stigma of having to deal with said issues in society.